Wednesday, November 28, 2012

just call me a guinea pig

Since my last post I got the blood results back and I am thankfully JCV Negative which means I am test dummy positive.

After further testing, including a full neurological exam, cognitive tests, and several different types of eye exams I was approved for the Tysabri Clinical Trial.

I had my first infusion in the beginning of November of it went well. it takes 2 hours, one hour for the actual infusion then I have to hang out for another hour to watch for reactions. thankfully it doesn't hurt and the nurse did a fairly good job getting the IV in my arm, usually that is a challenge since I have baby veins.

I go back for my next infusion in a few weeks, which I hope will go just as smooth.

The struggles I'm currently having, is my dang car... I can barely drive it around town without it breaking, let alone into another state. My mom has been great about taking me to and from appointments but I know it wears thin on her too :( With all my other medical bills I doubt I will be able to get a decent vehicle any time soon, but I guess that's the price of being an adult and being forced to make adult decisions...

On a happier note, this semester is almost over and it's Christmas time!!!!! MY FAVORITE!!!!!